BOOST Thyroid mission is provide Hashimoto’s patients with a full control over their health through enabling individuals to record and track own symptoms, get scientifically correct information, implement and track the benefit of changes in own lifestyle and facilitate conversation one might have with other patients or doctors.
By using our Services and providing information to us, you consent to the transfer to and processing of the information in the EU and the USA.
WHO WE ARE
BOOST Thyroid is operated by VLM Health UG, a German corporation, located in Berlin. We provide mobile application based service and conversational AI interface.
INFORMATION WE COLLECT
Boost Thyroid collects information to operate our business and provide you with innovative solutions for managing symptoms and lifestyle connected to Hashimoto’s and underactive thyroid.
Mobile phone application
We will collect Personal Data and Other Information.
1. “Personal Data” is information that can be used, directly or indirectly, alone or together with other information, to identify you as an individual: your name and e-mail address; your height, weight, your blood test results, your date of birth and date of diagnosis, your medication type and dosage.
2. “Other Information” is information that is de-identified, anonymous and aggregated, and does not reveal your identity. We collect and use this information to help research better understand autoimmune thyroid conditions and to understand how you use our Services and continuously improve, innovate and build a product to reflect your needs.
We may collect Other Information about your use of BOOST Thyroid Services, including for example your device type, date and time of access as well as how you interact with the Services (which app screens you viewed or interacted with and the length of the time spent on them).
We will receive usage data provided by your device while you are using BOOST Thyroid (e.g. mobile operating system for iOS/iPhone, your IP address, app usage data).
Our surveys are geared towards advancing scientific knowledge on Hashimoto’s and an underactive thyroid, are done through a third party provider, Typeform. Our surveys may be done in partnership with one of our research collaborators, in that case it will be clearly stated. Non scientific surveys have an aim to improve our Services.
Surveys will cover a range of topics. When you take surveys we may ask you to provide your Personal Data, such as e-mail, age and time of diagnosis that are necessary to the survey. Participation in surveys is voluntary, and in the case you have provided your e-mail, you can contact us at any point at email@example.com to ask for your data to be extracted and sent to you, or for your data to be deleted from the survey. You can read more in the section below: “How you can request to be forgotten”.
We may collect your Personal Data when you submit content (e.g. contacting support or leave review).
We use a data analysis service operated by Firebase. Your app usage data will be transferred and stored on a server in the USA operated by Firebase by Alphabet, Inc.
Each iOS device comes with an Identifier for Advertising (IDFA), a random, serial number. It is non-permanent and may be activated or deactivated by the you. IDFA does not identify the device or user. Your IDFA is shared with Facebook. IFDA can be reset by you at any time, or you can opt out by enabling a device setting called “Limit Ad Tracking” (LAT).
By using Boost Services you are deemed to have expressly consented to the use and processing of your data collected by Firebase and Facebook described above.
HOW WE USE PERSONAL DATA
We will use your Personal Data to:
Communicate with you, through a) monthly newsletter; b) specific updates to our services or c) personal correspondence on your request (if you contact us with a question or request)
Build a better BOOST Thyroid experience for you; a) provide you with a more personalized experience in app, using your name in the in-app communication; b) provide you with a tailor made analytics and relevant information, using your age, biological sex, BMI, medication and supplement type and dose, blood test results and symptoms to provide you with the most relevant insights and analytics of your wellbeing.
One of our goals is to forward science in the area of autoimmune diseases. So far there are virtually no large-scale datasets available to academic research, and BOOST Thyroid will help in the future by providing anonymized user data for such a research. We will update on our website, blog and through our newsletter on any and all scientific research we are conducting. Participation in any and all of the research with our external partners is voluntary and we will ask you for your consent.
We are using multiple layers of data protection, and are keeping your personal data apart from your tracking data, minimizing the risk of data breach. In the case of data breach happening within the app, our newsletter service (Mailchimp) or in surveys (provided through service Typeform), where you have left your e-mail, you will be contacted by us via e-mail.
BOOST THYROID AND SCIENTIFIC RESEARCH
PURPOSE of research studies conducted by BOOST Thyroid is to better understand autoimmune conditions and thyroid health. We will collaborate with diverse research partners around the globe to bring the new insights and knowledge faster to the general public, and in particular to you.
You are a part of our research studies because you are using BOOST Thyroid app and or have participated in one or more BOOST Thyroid surveys. Taking part in research studies is entirely voluntary, you will be asked for a specific consent in the app or via the survey, and you can withdraw your participation by contacting us at firstname.lastname@example.org, without giving a reason.
When conducting research studies we will always use anonymized data, pooled in groups, based on users symptoms or demographics. We will never use or share Personal Information or individual data.
You are free to participate in other research studies that are not run by BOOST Thyroid or our collaborators.
Although you will not be reimbursed for taking part in the research, unless otherwise specifically stated, there are a few benefits for you too: being a part of research increasing the knowledge on autoimmune conditions and thyroid health, as well as receiving updates on research as we hit big milestones.
Your health care provider will not be informed of your participation in our studies, unless there is a specific study, and specifically stated in the study consent form.
Your usage of BOOST Thyroid app and participation in any research will be kept confidential. Your identifiable data will not be used for any scientific research. Once research collaboration is completed, and scientific papers are published, aggregated and anonymized data will be kept for five years before being destroyed.
If at any point, you change your mind and wish not to participate in the research, you may withdraw your consent by contacting us at email@example.com, in that case all of your non processed data will be deleted.
As a result of research, there will be a scientific publications: a conference abstract or a manuscript published in a peer-reviewed journal, no publication will contain any of the personal or identifiable data. We will send a brief summary of our findings through our newsletter, and you can always contact us at firstname.lastname@example.org if you would like to receive more information.
If research finds something unexpected and of significance to your health, we will contact you and refer you to your general practitioner to clinically verify our findings. You are not obliged to visit your doctor.
If you wish to complain about any aspect of the way in which we collect the data or conduct research studies, please contact us at email@example.com
All of the research studies are sponsored by BOOST Thyroid and a selected research partner who is participating in a specific study.
HOW YOU CAN SEE YOUR DATA
You can view all of your data in BOOST Thyroid app: symptoms, lifestyle, medications and supplements tracked on the dashboard screen of the app; lab tests on the lab test screen of the app and all of your profile entries: name, email, age, height, date of diagnosis, type of medication and type of supplements, in settings screen. If you would like to export your data, please contact us at firstname.lastname@example.org using an e-mail you used to sign up for BOOST Thyroid app.
HOW YOU CAN REQUEST TO BE FORGOTTEN
You have a right to request all of your tracking and personal data to be deleted from our database. If you would like to delete your data, please contact us at email@example.com using an e-mail you used to sign up for BOOST Thyroid app, BOOST Thyroid Coach or BOOST Thyroid Lessons.
RESTRICTIONS TO BOOST THYROID APP USAGE
You have to be sixteen (16) years of age or older in order to use our app. In the case you are a parent of a child younger than 16, and would like for your child to use our app, please contact us at firstname.lastname@example.org.
HOW LONG WE STORE DATA
Your data has a maximum lifetime, we will store your data for twenty four (24) months after you have last accessed BOOST Thyroid app. You will be notified one month before we remove your data, allowing you to export your data or to continue using our services. If there is no request from your side, all your data will be removed and destroyed.
HOW WE DISCLOSE PERSONAL DATA
BOOST Thyroid will not disclose any of your Personal Data to third parties.
BOOST Thyroid highly values your Personal Data safety and is committed to protect it. To do so we use data safety recommendations from the safety bodies and have designed measures to maximally protect your information against unauthorised access, theft or loss.
For further information, inquiries or assistance you may contact VLM Health UG. Customer Service is available in ways specified on the website. The channels for support might differ from time-to-time.
CONTACT INFORMATION FOR DATA PROTECTION OFFICER
VLM Health UG